Good news...Coby's ready to start Dr. Sisson's new treatment protocol! YAY! We started his new anti-seizure medication Zonisamide tonight and began tapering him off the Phenobarbital. We will start the mega dose of Prednisone tomorrow morning. Take a look at my baby's medication schedule for the next 3 days!!
It took me at least an hour to put his entire medication schedule together. With all the medication changes - whether adding or discontinuing medication, decreasing or increasing medication doses, figuring out what blood work needs to be done when in conjunction with certain medication - it is overwhelming to say the least! But...I emailed my "medication schedule" to Dr. Sisson for his review - I had to make sure I had every med/dose/time correct. We're all set....however, it looks as if Coby will be on medication until at least mid-November.
Please continue to pray for Coby! Hopefully he responds VERY well to the medication and can be in FULL remission for his entire life!
Thursday, May 27, 2010
New Treatment Finally Begins
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Excellent Jaime! I know how daunting a schedule like that can be. I had something similar for my dog when she had cancer. In a few days, you'll be a pro at it and gain a great deal of confidence with it. I wish you and Coby all the best for a successful recovery! All our best, Louise, Penny (AKK), Nicky (AKK) and Mandy (AKK).
ReplyDeleteGood job on the schedule!
ReplyDeleteSend a little something for Coby :)
Our thougths and prayers...
Terry and the Tribe in Alaska
We're keeping you and Coby in our thoughts and prayers! It is so wonderful that Coby has such an excellent and dedicated owner making sure that he gets the best possible care. Also, thank you for educating the rest of the AKK community about GME.
ReplyDeleteTake care,
Steffi