Here is a brief summary of what happened from Thursday to today:
Thursday morning Coby had another CBC done. His neutrophils had increased to 1900 from Wednesday. He had a Neupogen injection both Wednesday & Thursday, but no more unless needed. I flew out to Boston & went to Angell Animal Medical Center to get Coby! I met with Dr. Sisson for some time to review Coby's medications & discharge instructions. Coby's meds included: Meropenem (injectable antibiotic), cholesttyramine (liquid used to remove all the leflunomide from his body) & Keppra (seizure medication) - all given 3 times a day. Dr. Sisson switched Coby's seizure medications - he really doesn't really thinks he needs an anticonvulsant because Coby has not once had a seizure since his intitial GME symptoms - the few he had were probably because of the GME/inflammation. I think we will taper the keprra down eventually & maybe d/c it all together. He thinks there is a 10-20% chance of him having a seizure without the meds, so he seems fairly confident Coby doesn't need that either! I was also given the vial of Neupogen just in case Coby needs another dose once we are back in Milwaukee. I was worried about taking all these meds & needles in the airport & thru security. Coby looked crazy with his legs & belly shaved, but he definitely looked much better than the day he was admitted. He was excited to see me & ready to get back home. After a 1 week stay at Angell, it cost $2000, plus an additional $600 for the airfare = $2600. (That does not include the weeks worth of hospital stays in Wisconsin the week prior). Below is a picture of Coby & Dr. Sisson.
Thank God. This is the news we like to hear. We will pray that his progress continues at rapid speed. Lord knows both you and he deserve it! Keep up the good work!
ReplyDeleteChris, Greg & Kassi