Coby is now on 20mg cyclosporine daily - this is the safest thing since it suppresses the immune system and is often used as a therapy for GME as well. Hopefully Coby responds to this treatment and we will just continue the meds for life. Unfortunately these meds are expensive - more expensive than his chemo meds!
In addition, we were given the option to have blood allergy testing done to determine exactly what Coby is allergic to. This is mainly done with the assumption one will proceed with the allergy injections (to determine the serum one would need). However, there is a risk for Coby & allergy injections as the antigens might cause a GME relapse. We are not going to give any allergy injections at this point, but Dr Sisson did suggest still getting the testing done so we know exactly what Coby is allergic to. For one, to see if he has any "avoidable" allergies or if in the future the cyclosporine doesn't work & we have to opt for the injections we will know what he is allergic to. So, of course I decided to get the test done. We won't have the results back for about 2 weeks, so until then....hopefully the cyclosporine kicks in & Coby stops itching and biting! He now has to occasionally wear his little cone e-collar to prevent him from doing any more damage to his little body.