Coby has been hospitalized

Coby has been hospitalized with a fever of 105.7 - he has caught an infection & is now septic. Thankfully, we caught it early enough today from the symptoms he was exhibiting - shivers/tremors, diarrhea, vomiting, lethargic. I knew in my gut something was wrong, emailed Dr. Sisson (our neurologist in Boston) who suggested bringing him to the ER. We did just that & if we had not, Coby would have died. Coby had a fever of 105.7 indicating sepsis. He is currently at the hospital where he will remain for a few days. He is receiving 3 different IV antibiotics and IV fluids. They ran blood work and as Dr. Sisson predicted, Coby's white blood cells/neutrophils were very low. The normal "low" (for neutrophils I think...I don't have his lab work with me) is around 5500...Coby's level was 260!!! Either way, it was SUPER low!!! The goal is now to get them back to normal, get rid of this infection & hopefully be home by Christmas. Coby will be off all his chemo medications for right now & only on the zonisamide for his seizures.

I am not sure of the medically correct reasoning for what has happened, but it has something to do with Coby no longer being on prednisone & because of that, he is unable to handle such a big chemo load like last month. It was confusing when I was explained that over the phone, so I apologize if I am totally wrong. Once I have a correct answer, I can repost.

On a positive note, there is a "silver lining" to the situation according to Dr. Sisson: His chance of relapse is lower because the cells causing the disease were severely damaged the same way his normal cells were which made him sick.

I will continue to post updates as I receive them! For now, positive thoughts & looking forward to having Coby home for Christmas. Here are some pictures of him this morning when I thought he was only shivering b/c he was "cold".